My world
I'm not sure how I feel and I'm even less certain how I'm going to feel. I wanted Kaye to die, I wanted her to be free from suffering and pain, not to have to fight for breath continually, not to be cold all the time because there wasn't enough oxygen in her blood. I wanted her to be free of all that, to know what it was like to be fit and strong, to be able to walk by herself without having to hold on, to be able to laugh without coughing. No more watching the fingertips and the lips for signs of blue, no more listening to her struggling to breathe.
Well, I've got that now. That's all over with, it's finished. I have said my goodbyes, I have seen the coffin turned away from me, watched it go from my sight. I have chosen the spot for her rest, I have seen the place where we will lie together once more.
I was going to be so strong, so resolute, so masterful. I was going to be in total control of everything including my emotions. No more frustration for me, I would be free to get into the workshop, free to go out without worrying about when the relief carer would be leaving. I wouldn't have to lie there and wonder if her breathing would stop as it got shallower and fainter. Well, now I am free, I can go out to the workshop, I can take the bike out, I don't have to lie there and strain to hear her breathing any more. And I'd give it all up just for one more sight of her, the sound of her voice calling me just one more time. Sometimes it was dificult not to be irritated when she called me, but I was irritated not by her, but by her need of me. It was her illness, her pain and hurt, her dependance on me that was so very wrong. No one should ever be that reliant on another person
I was happy for myself to serve her, to meet her needs as best I could. It was another way I could show her that I love her, it was something that I could do for her. I was happier then than I am now. I am essentially a Mr Fixit, if something is wrong, then I have to repair it, I have to make it better. Well I couldn't make Kaye better, but I could care for her and look after her, I could see to her needs as best I was able. I tried very hard not to let her see my annoyance when she had to call me, but she was very hard to hide things from and she knew how I felt. But by getting her meals, by emptying the potty, by drying her after the shower, by helping her dress, by being with her, I was doing what I could to fix the situation.
But now there is nothing I can do, the situation has changed to the point where it is not fixable. I have no alternative but to live my way through it, and this I do not like. Inactivity is not natural to me, any action even a wrong action, is better than no action. Yes there are things to be done, and I have done some of them. I have organised the will and set that in motion, I have cleared out her wardrobe, I have given away some of her paintings, I have sent out thankyou letters to the card senders. But these things do not help me return to my world, they can't, for my world no longer exists, Kaye was my world and I have no world left. The boys have their jobs, John has his family, Geoff has his friends and where does that leave me? I do not begrudge them these things, they have earned them and they deserve them, but I have no job, I have no friends who call on me, I have no normal world to return to.
Different people have told me to call in anytime I want to talk, but that creates it's own problems. If I drop in, then I am afraid I will be in the road, I will be a bother and a nuisance. And if I call in it is because I want to see them, not because they want to see me. And that is what I want, I want other people to want to see me. Right now I want company offered to me, I want to be given friendship, not go out and take it. When I called in at Wonthaggi, I was terrified I would be a pest and a bother. If I was, then I never noticed it and I love those people even more because of that. One of the church familes invited me round for a specific function and I accepted gladly and joyfully. That was them wanting to see me, that was me being significant to them. And right now, that is what I desperately want. I was important to Kaye, now I am not. My world is empty and I dont know how to fill it up again

